A dedicated HF global registry
Overview
The Report HF Registry1 is a global, prospective registry that follows patients for 3 years after hospitalisation for HF. It aims to shed light on the quality of post-discharge care and factors linked to re-admission.
What they did
The Registry will collect data on HF patient demographics, co-morbidities, treatment, quality of life and health outcomes as well as economic data from approximately 300 health care sites in 40 countries. 1
The Registry aims to enrol and follow- up approximately 20,000 patients worldwide who are newly diagnosed with HF. 1
Resources and other practical implications
The clinical data collected in the REPORT- HF registry is likely to provide an important evidence base for health policy design and practice.
Links, references, and key reading
http://www.hra.nhs.uk/news/research-summaries/report-hf-a-heart-failure-disease-registry/
- Filippatos G, Khan SS, Ambrosy AP, et al. International REgistry to assess medical Practice with lOngitudinal obseRvation for Treatment of Heart Failure (REPORT-HF): rationale for and design of a global registry. Eur J Heart Fail 2015;17(5):527-33.