Examples of what has been done

A dedicated HF global registry

Overview

The Report HF Registry1 is a global, prospective registry that follows patients for 3 years after hospitalisation for HF. It aims to shed light on the quality of post-discharge care and factors linked to re-admission.

What they did

The Registry will collect data on HF patient demographics, co-morbidities, treatment, quality of life and health outcomes as well as economic data from approximately 300 health care sites in 40 countries. 1

The Registry aims to enrol and follow- up approximately 20,000 patients worldwide who are newly diagnosed with HF. 1

Resources and other practical implications

The clinical data collected in the REPORT- HF registry is likely to provide an important evidence base for health policy design and practice.

Links, references, and key reading

http://www.hra.nhs.uk/news/research-summaries/report-hf-a-heart-failure-disease-registry/

  1. Filippatos G, Khan SS, Ambrosy AP, et al. International REgistry to assess medical Practice with lOngitudinal obseRvation for Treatment of Heart Failure (REPORT-HF): rationale for and design of a global registry. Eur J Heart Fail 2015;17(5):527-33.