Call to action

Heart failure is a forgotten condition and few countries feature it in their cardiovascular health strategies. What’s more, it is often considered a lost cause – when in fact appropriate diagnosis and care can make a huge difference to improving patient outcomes, avoiding unnecessary suffering by patients and decreasing costs for society.

With the number of people living with heart failure increasing rapidly, forward-thinking strategies are urgently needed to reduce the burden heart failure poses on our societies and ensure that every person with heart failure is offered the best-quality diagnosis and care possible.

We call upon governments across Europe to commit to improving the lives of people living with heart failure by focusing on the following priority actions:

Make HF a national priority

1

National HF strategies with measurable goals

Every country should feature HF as a major condition within their cardiovascular disease and chronic disease strategies.

2

Public awareness campaigns

Ministries of health should work with public health authorities, professional societies and patient organisations to help people recognise the signs of HF and encourage them to seek appropriate care.

3

Data-driven resource planning

Ministries of health should invest in reliable data collection to guide improvements that will make the biggest difference to patient outcomes and make the best use of available resources.

Ensure timely diagnosis and prevention in those at risk

4

Professional training

All healthcare professionals who are in contact with people at high risk of HF should receive specific training in HF diagnosis and management.

5

Availability and reimbursement of diagnostics

National healthcare systems should provide appropriate reimbursement for guideline-recommended diagnostics and ensure their widespread availability in hospital and relevant community settings.

Deliver multidisciplinary, person-centred care

6

A standardised HF pathways that reflects clinical guidelines

All patients with HF, regardless of where they are treated, should be offered high quality care consistent with ESC guidelines (or national equivalents) delivered by a specialist-led multidisciplinary team.

7

A dedicated contact for follow up care

Patients hospitalised for HF should leave the hospital with:

  • A clear discharge plan which reflects individual patient needs and circumstances
  • A dedicated contact for follow up care
  • An appointment to see a HF specialist within 2 weeks of discharge.
8

Person-centred care plans focused on improving quality of life

All patients with HF should be offered a personalised long term care plan to help them self-manage their condition.

Invest in tools and resources in primary care

9

Workforce planning in primary care

Governments should evaluate existing professional capacity in primary care to ensure dedicated professionals are available to provide comprehensive care to people living with HF.

All nurses should receive training in HF and, where appropriate, HF specialist nurses should be officially recognised as a profession.

10

Investment in innovative technologies that promote self-care

Governments should invest in the implementation of tools which may enable patient self-care and reduce avoidable hospital admissions (e.g. patient monitoring devices).

Signed by members of the network:

Dr Mark Dancy

Cardiologist,

UK

Penilla Gunther

MP,

Sweden

Dr Jose Ramón Juanatey

Cardiologist,

Spain

Marie-Claire Lambert

Honorary MP,

Belgium

Kristiina Salonen

MP,

Finland

Sirpa Pietikainen

MEP,

Finland

Dr Pierre Troisfontaines

Cardiologist,

Belgium

Dr Cristian Silviu Busoi

MEP,

Romania

Aldo Patriciello

MEP,

Italy

Marc Tarabella

MEP,

Belgium

Dr Ian Duncan

MEP,

Scotland

Dr Stanimir Hasardjiev

National Patient Organisation

EU

Neil Johnson

National Institute for Preventive Cardiology

Ireland

Dr Hora Cristian

MP,

Romania

Prof. Martin Cowie

Imperial College London

UK

Nick Hartshorne-Evans

Pumping Marvellous iHHUB

UK

Dr Ursula Marschall

Barmer GEK

Germany

Pascal Garel

HOPE

EU

Prof. Felix Gutzwiller

MP,

Switzerland

Annie Schreijer-Pierik

MEP,

Netherlands

Dennis Robertson

MSP,

Scotland

Dr Alan Haycox

Liverpool University and Liverpool Health Economics

UK

Deputy Sean Kyne

TD,

Ireland

Other supporters across Europe:

Hope - European Hospital and Healthcare Federation
European Specialist Nurses Organisations
Belgian Working Group in Heart Failure
iHHub - The Global Voice for Heart Failure Patients
Mon Coeur Entre Parentheses
National Institute for Preventative Cardiology
Association pour les Patients Insuffisants Cardiaques
Croi - Fighting Heart Disease & Stroke
Pumping Marvellous - The heart failure charity

Anna Dé

UK

Mrs Deborah Budding

HF Patient,

The Netherlands

Kayla Budding

Carer,

Netherlands

Mrs Anne Mccarthy

Mrs Sue Wakelam

Assistant Manager, s.m.b.council

West Midlands, UK

Mrs Sue Wakelam

Assistant Manager, s.m.b.council

West Midlands

Miss Donna Cook

Scotland

Mrs Abigail Findley

Heart failure patient

UK

Mr Cornelis Budding

Carer,

The Netherlands

Mrs Ann Ross

Scotland

Mr. Dennis, Lionel Mather

Heart failure patient,

Britain

Sam Redmond-Lyon

Head of Digital & heart failure patient, iHHub - The International Heart Hub - the global voice for heart failure patients

UK

Mr Steven Macari

France

Ms Mandie Santon

Clinical Lead Heart Failure, DCHS

Derbyshire

Mrs Sally Margerison

Heart Failure Specialist Nurse,

Great Britain

Mr Mark Jones

HF patient,

England

Claire O' Connell

Ireland

Mr Daniel Mansuk Han

University College London

Steffen Uffenorde

Junior Manager Market Access, St. Jude Medical

Germany

Mieke Beselaere

Switzerland

Mr Alain Casanova

Market Access Project Manager, Novartis

Switzerland

Dr Ana Plata

Market Access Director, Novartis

Switzerland

MSc, Lic.oec.HSG Stefan Weber

Switzerland

Mr Marco Hardt

Germany

MD, Cardiologist Nekane Murga

Head of cardiology department, Osakidetza

Basque country

Roel Ter Hart

Netherlands

Prof. Dr. Gerhard Poelzl

Director Heart Failure and Heart Transplant Unit, Medical University Innsbruck, Dep. of Cardiology and Angiology

Austria

Ms Sandra Mulrennan

Clinical Nurse Specialist, St Bartholomews Hospital

England

Mrs Kathryn O'Toole

Nurse Practitioner, Adelaide Cardiology

Australia